Design for Everyone, Disabled or Not

January 7, 2007
National Perspectives By Lisa Chamberlain

St. Louis, MO – SHARON M. BROWN cried tears of joy the first time she took a
shower without assistance in her new apartment. She had not been able to do
anything more by herself than take sponge baths since she was hit by a
drunken driver six years ago, further complicating the multiple sclerosis
that had been diagnosed years earlier. For someone who had once hiked 100
miles of the Appalachian Trail, she never thought taking a shower would be
such a milestone.

Ms. Brown’s apartment building  which has bathrooms that are accessible to
people in wheelchairs, including roll-in showers  is a milestone itself. The
building, 6 North, opened in March 2005, and it was the first large-scale
residential building in the country where all the units were built using
what are called universal design principles.

While building codes set a minimum standard regarding accessibility,
universal design is a relatively new concept that seeks to go beyond those
codes to make the built environment usable by all people without the need
for adaptation. This might include kitchen islands with adjustable-height
countertops, front-loading washers and dryers, roll-in showers, and no-step
entrances, eliminating the need for ramps.

But the important point, according to universal design advocates, is that it
looks and feels like a normal apartment building. Rather than relying on
designs that can segregate people according to their disability (impaired
vision versus low mobility, for example), the intent of universal design is
to create products and environments usable by as many people as possible,
including people with no disabilities at all.

According to the Center for Universal Design at North Carolina State
University, universal design is increasingly available, but few if any other
large-scale buildings have used the concept throughout an entire building.
The term “universal design” was coined in 1989 by the architect Ron Mace,
who developed a set of seven principles, like “low physical effort” and
“simple and intuitive use.” Mr. Mace founded the center, in Raleigh, before
he died in 1998 to further develop and integrate the principles into
everyday life.

Colleen Starkloff and her husband, Max, who was paralyzed in a diving
accident as a young man, wanted to build a national model of universal
design. Through Paraquad, a nonprofit organization they formed in 1970, they
had been searching for a developer who would undertake a universal design
project. It was 2003 when Richard D. Baron, the chairman and chief executive
of McCormack Baron Salazar, a nationally known builder of mixed-income urban
developments, contacted them with what he thought might be a potential site
for the project.

“He called me and said: I think I have a good site. How many units do you
want to be universal design?’ I said: Richard, I want all of them to be
universal design. That’s the point: universal.’ And he kind of hesitated and
said, O.K., we’ll make it work.’ “

Mr. Baron hired Andrew Trivers, founding architect of Trivers Associates, to
create a mixed-use environment for nondisabled people as well as people with
a wide range of disabilities.

The building, in a St. Louis neighborhood called the Central West End, is 95
percent leased, with only 20 units occupied by people with disabilities,
which is fine by Ms. Starkloff. “The whole point is integration,” she said.

For Jacqueline Benoit, integration meant more than living next door to
people without disabilities, but being able to live with and take care of
her son Johnathan again. Ms. Benoit was on her way to work four years ago
when a driver struck her car. After six months of intensive care, she was
able to breath on her own again. But the accident left her partially
paralyzed, and she was sent to nursing homes for three years while her son
stayed with relatives.

Ms. Benoit and Johnathan, now 7, moved into a two-bedroom, two-bath
apartment in 2005, which includes subtle design features like door handles
instead of knobs for easier grasping, a dishwasher and oven that are set
into the wall and raised about 18 inches off the ground (a usable height for
people standing and sitting), and a stove with control knobs in front of the
unit rather than toward the back.

The design features make life more manageable for Ms. Benoit, but the
building also offers something for Johnathan. “He loves the weight room,”
Ms. Benoit said. “We go together and I work on my arm. I’m happy to be alive
and be able to take care of my son.”

Before designing 6 North, Mr. Trivers had never used universal design
principles, but now he is a convert. “This is the future,” he said. “People
are living longer and because of health care technology, they aren’t dying
from accidents and disabilities the way they used to. So the question is,
how do you design so it doesn’t look like it is for or is only usable by
someone with a specialized need?”

Richard C. Duncan, the senior project manager for the Center for Universal
Design, said: “Most people think U.D. is a term that is synonym with
accessible design. But it has this other element that is different: a social
equity component. That is an invisible part of the product.

“So, for example, a ramp is very difficult to integrate into the design of a
building,” he continued. “We advocate for entrances that are step free, that
everyone can use, whether you have a problem with stairs or you’re just
carrying packages.”

Mr. Duncan toured 6 North when it opened with other disability advocates and
developers, and said the building was serving as a model. “And that is
progress because what we don’t want are one-off projects, but full
integration,” he said.

Most “handicapped accessible” buildings, he also pointed out, have two
different apartment designs: “normal” units and accessible units for people
with disabilities. “And neither are in fact very user friendly,” he said.
“The point of universal design is integration of design principles into all
aspects of the built environment so as not to be obvious for one or
another.”

For instance, at 6 North, what looks like interior decoration is actually
intentionally contrasting colors to allow people with limited vision to
navigate the space. In the hallways, carpeting in front of apartment
entrances is darker to signal the door’s location. Next to each entryway is
a small shelf, which looks like a nice design detail but is also a handy
spot for people to put down mail or packages while they open the door. This
is, of course, equally convenient for a parent carrying a baby or people
with partial paralysis.

Jacquelyn Kish is one such person with partial paralysis, the result of a
brain aneurysm and stroke she suffered 18 months ago. She moved into 6 North
recently in order to resume rescuing injured or abandoned animals, which she
was forced to give up when she was in a nursing home and lost her house as a
result.

“I was told I shouldn’t leave the nursing home until I could walk,” Ms. Kish
said while petting one of her rescued cats. “But I was determined to live on
my own again. I can do that here.”

As for Ms. Brown, living independently is more important than having hiked
on the Appalachian Trail. “Being able to take care of yourself  you don’t
appreciate that until you’re told you can no longer do it,” she said.

Source: New York Times
http://www.nytimes.com/2007/01/07/realestate/07nati.html

STRATEGY

Serbian Government adopted on 28th of December Strategy for improvement the status of persons with disabilities. This is extremely important news at the end of one and at the beginning of one new year.

Happy New 2007!

EDUCATION FOR MEMBERS OF POLITICAL PARTIES IN NOVI SAD ON BASIC FACTS ON DISABILITY ISSUES!

Center “Living Upright” – Novi Sad and its allies Association of Students with Disabilities Novi Sad realised the education for members and representatives of political parties in Novi Sad on basic facts on disability issues. The aim of this project was to establish continual cooperation with the parties on the local level based on information exchange and influence on creation the conditions for advocacy for disabled citizens and their interests. This project supported SHARE SEE programmee of Handicap International, DFID and European Commission through European Initiative for Democracy and Human Rights within OEBS Mission in Serbia.   U petak 15. decembra završen je poslednji ciklus predavanja. U edukaciji su učestvovali predstavnici/e Demokratske stranke, Demokratske Vojvodine, Liberalno demokratska partija, Liga socijal-demokrata Vojvodine, Pokreta „Snaga Srbije“, Socijal-demokratske partije, Serbian renewal movement, G17Plus party and members of Ministry for Internal Affairs of Serbia.All six groups have heard lectures on the topics Models and Language of Disability (by Milica Mima Ruzicic-Novkovic i Ivan Novkovic, Center Living Upright – Novi Sad), Standards and Law Regulations (by Damjan Tatic, Center for Independent Living Serbia), Accessibility and Design for All (by Miodrag Pocuc, Center Living Upright – Novi Sad). They have also heard topics on Support Services for Persons with Disabilities (by Gordana Rajkov, Center for Independent Living Serbia) and especially for the members of Ministry for Internal Affairs on Violence on Persons with Disabilities (by Lepojka Carevic – Mitanovski, Group …From the Circle).Final results will be announced within the tool kit for participants of this education untill the end of January 2007.                                                                           

AWARDS COMPETITION

PASS Project is coming to its end in a form that has been known until now. We hope that the ongoing campaign will influence its continuation in some other way of funding but still satisfying the needs of present and future users and their PAs.

 

Years ago, writing the project proposal, Center for Independent Living thought how to make one nice and pleasant surprise at the end of the project, for its members, associates, users and personal assistants. This is a small competition for:

 

  1. the best organized PASS campaign
  2. user who made a greatest change in his/her life thanks to PA service
  3. the best personal assistant.

 

Final decision will be made by the jury, consisted of persons who were not directly involved in PASS project and we hope that we will together finish this phase of PASS project in a nice and affirmative way.

We will announce the final results after the 20th of December.

Tribune on UN Convention in Novi Sad

Center for Independent Living Serbia in cooperation with Association of Students with Disabilities and Center „Living upright“ from Novi Sad organise Tribune on UN Convention in Novi Sad on Thursday, 14th of December. The Tribune will take place at Facultz for Technical Science University of Novi Sad at noon.

This event is going on within the CIL project of Promotion of UN Convention funded bz Ministrz for Labor, Employment and Social Policy of Serbia. The moderator of the Tribune will be Bojan Tubic, Assistant at Law faculty and the spokesmans will be Damjan Tatic, Serbian expert at Ad hoc committee UN for International Convention on Rights of Persons with Disabilities and Milesa Milinkovic, President of Association of Students with Disabilities Novi Sad and student vice dean Vladimir Todorovic.

UN Convention adopted

The first news on adoption the International Convention on Rights of Persons with Disabilities we have got from DPI Asia/Pacific Region.The adoption on 13th of December was followed through UN Webcast and later on celebrated with real birthday cake with candle lights. CONGRATULATIONS TO ALL PERSONS WITH DISABILITIES ON THIS GREAT DAY.

Round table in Sarajevo

Recently organised Round table in Sarajevo „The best practice in Bosnia and Herzegovina and Region“ presented some researches within the project „Support to development of Disability Policy in Bosnia and Herzegovina“.As we have only document in Serbian language you may contact organiser (zbahto@ibhibih.org) of the Round table to get information in English on the following:  

  1. The estimation of financial sustainability of implementation of strategy and policy in disability area;
  2. Survey on best practice in disability area in Bosnia and Herzegovina;
  3. Survey on existing policy and legislation in Region and EU in disability area and
  4. Survey of National action plans for social inclusion of EU member states and states in Region with focus on disability policy.

PASS presentation in Bosnia and Herzegovina

Round table on „Best practices in Bosnia and Herzegovina and Region“ will be held in Sarajevo on 30th of November within the project SUPPORT TO DEVELOPMENT OF DISABILITY POLICY IN BOSNIA AND HERZEGOVINA (2005-2009) funded by Finland Governement.  The aim of this project was establishing adequate and sustainable system of social welfare, for completely recognizing the rights and possibilities of persons with disabilities and civil war victims. This means adjustment of legal and social protection of all persons with disabilities based on inclusive standard rules for equalisation of opportunities, as well as establishment of mixed system of social welfare. It is important, therefore,  to work on further development of disability policy. Representatives of Center for Independent Living Serbia will present the experience of Personal Assistants Service in Serbia and there will be also representatives from Macedonia, Croatia and Bosnia and Herzegovina who will speak on their positive results. 

Promotion of International Convention on Rights of Persons with Disabilities

Center for Independent Living Serbia organised on Tuesday, 28th of November, at 5 p.m. tribnune „International Convention on Rights of Persons with Disabilities: the first convention on human rights in the new millenium“. The tribune will be held in amfitheatre 8 of Faculty of Law, Belgrade University.  This was the part of the project of Promoting the Convention on Rights of Persons with Disabilities. Project holder is Center for Independent Living Serbia and the donor is Ministry for Labor, Employment and Social Policy of Serbia.  The facilitator of tribune will be Professor Jovica Trkulja and the speakers will be, Sladjana Markovic, Assistant of Minister for Labor, Employment and Social Policy of Serbia, Marija Antonijevic from Ministry of Foreign Affairs of Serbia, M.Sc Damjan Tatic, Serbian expert at UN Ad hoc Commitee for International Convention on Rights of Persons with Disabilities and Gorjana Gordic from Center for Independent Living Serbia. This is the second tribune within the serial planned for University centres in Serbia – the first one was organised in Nis on 20th of November. The tribunes were also planned for the local authorities and the first one was in Smederevo on 26th of October.

International Day of Disabled Persons

The annual observance of the International Day of Disabled Persons, 3 December, aims to promote an understanding of disability issues and mobilize support for the dignity, rights and well-being of persons with disabilities. It also seeks to increase awareness of gains to be derived from the integration of persons with disabilities in every aspect of political, social, economic and cultural life. The theme of the Day is based on the goal of full and equal enjoyment of human rights and participation in society by persons with disabilities, established by the World Programme of Action concerning Disabled Persons, adopted by the General Assembly in 1982.

How the Day may be observed

  • Involve: Observance of the Day provides opportunities for participation by all interested communities – governmental, non-governmental and the private sector – to focus upon catalytic and innovative measures to further implement international norms and standards related to persons with disabilities. Schools, universities and similar institutions can make particular contributions with regard to promoting greater interest and awareness among interested parties of the social, cultural, economic, civil and political rights of persons with disabilities.
  • Organize: Hold forums, public discussions and information campaigns in support of the Day focusing on disability issues and trends and ways and means by which persons with disabilities and their families are pursuing independent life styles, sustainable livelihoods and financial security.
  • Celebrate: Plan and organize performances everywhere to showcase – and celebrate – the contributions by persons with disabilities to the societies in which they live and convene exchanges and dialogues focusing on the rich and varied skills, interests and aspirations of persons with disabilities.
  • Take Action: A major focus of the Day is practical action to further implement international norms and standards concerning persons with disabilities and to further their participation in social life and development on the basis of equality. The media have especially important contributions to make in support of the observance of the Day – and throughout the year – regarding appropriate presentation of progress and obstacles implementing disability-sensitive policies, programmes and projects and to promote public awareness of the contributions by persons with disabilities.

 For more information, please contact:
Department of Economic and Social Affairs
Division for Social Policy and Development
United Nations Headquarters
Two United Nations Plaza, 13th Floor
New York, N.Y. 10017
Fax: 1 (212) 963-3062.

World Congress on Disability

World Congress and EXPO on Disabilities, the world’s leading disability event will be held from 17th  untill 19th of November 2006 in Pensilvania Convention Center in Philadelphia. This Congress is dedicated to improving the lives of thhose with developmental and physical disabilities, their families and professionals who work with them.For more information on this extraordinary event see: www.wcdexpo.com