With Parthership Towards Development

Center for Independent Living Serbia started the implementation of the project which aim is to maintain integrative model of social protection related to higher social inclusion of PWDs through development of efficient partherships with all relevant stakeholders in local community.

Ministry for Labor and Social Policy fund this project that should contribute to strengthen capacity of DPOs, decision makers and other stakeholders in loca lcommunity towards development integrative model of social protection and network creation helping support and improvement of partnerships within the local community.

There were two educational workshops in Leskovac on 24 and Smederev on 27of November and those are the municipalities where this project will be implemented for the time being.

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FREE OUR PEOPLE NOW!

Across Europe, thousands of disabled people still spend their lives inappropriately and unjustifiably segregated from society. With a severe lack, or complete absence, of community-based services in many European countries, untold numbers of people with disabilities have no access to quality alternatives to institutional care.

The segregation of people with disabilities in long-stay residential institutions is in itself a violation of disabled people’s human rights.

To ensure that people can move into the community, and will no longer need to live in long-stay residential institutions, it is essential that governments, service providers and funding agencies commit to shifting the funding from long stay institutions to community-based services. They must focus on the development of quality community-based services that are available to everyone who needs them. Article 19 of the UN Convention on the Rights of Persons with Disabilities provides that all disabled people have the right to live and participate in the community. Comprehensive, quality community-based services must therefore be available and accessible to all people with disabilities, including people with complex dependency needs.
 

ENIL and ECCL call on:

Relevant authorities, government agencies, political bodies, service providers and funding agencies:

 

  • To actively develop quality, comprehensive community-based services that comply with the following basic quality standards:

           -Location within a local community
           -Opportunities to interact with other members of the local community
           -Respect for each person’s personal space, privacy and property
           -Availability of the necessary personal support for each disabled person

  • To stop financing or otherwise supporting the establishment of new long stay institutions for any group of disabled people;
  • To stop new admissions to existing long stay institutions and provide quality community-based services instead of placing people in institutions;
  • To ratify without reservations the UN Convention on the Rights of Persons with Disabilities and the Optional Protocol.

Relevant organisations and members of the public:

 

  • To support the right of all people with disabilities to live in the community as equal citizens;
  • To support the development of quality, comprehensive community-based alternatives to institutional care.

Signatures will be collected until the next Freedom Drive in 2011, when disabled people from all over Europe will gather in Strasbourg to campaign for their rights and to address their MEPs. The petition will be presented to the European Parliament and other authorities at the European and national levels.

http://www.enil.eu/enil/index.php?option=com_petbreak&func=viewcategory&Itemid=99999999&catid=2

   

COMMEMORATING THE INTERNATIONAL DAY FOR THE ELIMINATION OF VIOLENCE AGAINST WOMEN

AGAINST THE FORCED STERILISATION OF GIRLS AND WOMEN WITH DISABILITIES 

25th November 2009 

Today, 25th November, International Day for the Elimination of Violence against Women, the European Disability Forum (EDF) joins the struggle against all forms of gender violence, to which thousands of women in the European Union and worldwide fall victim. In light of the United Nations Convention on the Rights of Persons with Disabilities (Article 12, Equal recognition before the law, Article 16, Freedom from exploitation, violence and abuse, Article 17, Protecting the integrity of the person, and Article 23, Respect for home and the family), EDF recognises that forced sterilisation is a form of violence that violates the rights of person with disabilities to form a family, decide on the number of children they wish to have, gain access to information on family planning and reproduction, and retain their fertility on an equal basis with others. 

In light of the above, EDF declares: 

  • In several countries in Europe there is clear evidence that forced sterilisation continues to be carried out on many persons with disabilities, above all on girls and women with intellectual or psychosocial disabilities and without their consent or their understanding the specific purpose of the medical operation, under the pretext of the wellbeing of the person with disabilities.
  • For many girls and women with disabilities this experience, to which they are forced against their will, intimidated and pressured, is a denial of their right to access appropriate services. Their fundamental human rights, including the right to safeguard body integrity and maintain control over their reproductive health, are violated and removed, at times without their realising.
  • The consent of the parents or person that represent a girl or woman with a disability, when requested because of her minor age or previous legal incapacitation, must in all cases be based on the respect of the human rights and will of the women or girl with a disability. It is also the responsibility of the relevant medical personnel to ensure that the woman or girl with a disability is adequately informed about the fact that the surgery or medical intervention will lead to her being sterilised and the consequences of this for her future.
  • Women and girls with disabilities have the same right to maternity as other women. Adequate services are the solution for ensuring that women in need of support can enjoy this right fully.

 In light of the above, EDF calls for: 

  • All public powers to revise the legal framework regulating forced sterilisation, addressing the issues of “informed consent” and “legal capacity” in order to make the necessary accommodations and fulfil the spirit of, and obligations under, the Convention, which requires signatories to introduce legal reforms acknowledging that respect for the home and family and the dignity and integrity of persons with disabilities are fundamental rights which may not be violated. 
  • Studies to be undertaken to bring to light the reality of sterilisation in Europe in the case of persons with disabilities, such studies to include the perspectives of gender, age and type of disability and offer accurate statistical data on forced and therapeutic sterilisation.
  • Necessary measures to be taken in terms of awareness, information and training aimed at both the families of girls and women with disabilities who are most vulnerable and at greatest risk of suffering forced sterilisation, and professionals, above all health care professionals and those involved in the legal field, to ensure they listen to the voices of girls and women with disabilities during legal investigations and proceedings. These measures shall be taken in close co-operation with representative organisations of persons with disabilities.
  • Appropriate schemes must be developed with the objective to ensuring both that pregnant women and girls with disabilities get support in preparing for maternity and that mothers with disabilities in need of support to take care of their children have access to adequate assistance and services.

 LET’S JOIN FORCES TO PUT AN END TO GENDER VIOLENCE ONCE AND FOR ALL! TOGETHER WE CAN!  

Center for Disease Control and Prevention, USA

Among people with disabilities, the following groups are at higher risk of acquiring the H1N1 infection:

  • People who have difficultly breathing – (ventilator users and individuals with asthma and other respiratory conditions – this could include individuals with a range of disabilities such as intellectual and developmental disabilities, cerebral palsy, spinal cord injury, seizure disorders, and metabolic conditions).
  • People who have difficulty fighting infections or who are immunocompromised – (individuals with HIV, cancer, and other types of immune suppression, or individuals using immunosuppressive medications).
  • People of any age who have chronic health conditions (heart disease, metabolic [i.e., diabetes], renal, hepatic, hematological [i.e. sickle cell anemia], pulmonary, or neurological disorders).
  • People who have pharmacological dependency.
  • People younger than 19 years of age who are receiving long-term aspirin therapy due to their risk of developing Reye’s Syndrome.
  • Children prone to dehydration from poor nutritional and fluid intake caused by prolonged vomiting and diarrhea, or underlying metabolic conditions.

Disability groups at risk of getting flu and/or having unrecognized flu symptoms include:

  • People who have limited mobility or who cannot limit coming into contact with others who are infected, like staff and family members
  • People who have trouble understanding or practicing preventive measures such as hand washing
  • People who may not be able to communicate symptoms of illness
  • People who may not be monitored closely for symptoms of illness

What are the symptoms of 2009 H1N1 flu?

The symptoms of 2009 H1N1 flu virus in people are similar to the symptoms of seasonal flu and include fever, cough, sore throat, runny or stuffy nose, body aches, headache, chills, and fatigue. Some people may have vomiting and diarrhea. People may be infected with the flu, including 2009 H1N1, and have respiratory symptoms without a fever.

How can someone avoid getting 2009 H1N1 flu?

The flu is spread from person-to-person, mostly through coughing or sneezing. You can take simple actions to protect yourself and others from getting the flu:

·         Get a seasonal flu shot now and the 2009 H1N1 flu shot as it becomes available.

·         Cover your nose and mouth with a tissue when you cough or sneeze. Throw the tissue in the trash after you use it.

·         Wash your hands often with soap and water, especially after you cough or sneeze. If soap and water are not available, use an alcohol-based hand rub.

·         Avoid touching your eyes, nose, and mouth. Germs spread this way.

·         Try to avoid close contact with sick people.  If you get sick with flu-like illness:

·         Contact your health care provider. Your health care provider can determine if you need to be treated with antiviral medication.

·         Keep away from others as much as possible to keep from making them sick. CDC recommends that you stay home for at least 24 hours after your fever is gone except to get medical care or for other necessities. Your fever should be gone without the use of a fever-reducing medicine.

Is there a vaccine against the 2009 H1N1 flu, and for whom is it available?

Yes.  A vaccine for the 2009 H1N1 flu has been developed and is becoming available.  Groups prioritized for initial doses of influenza vaccine based on their risk of developing severe disease include  (see also http://www.cdc.gov/h1n1flu/vaccination/vaccine_keyfacts.htm):

·         pregnant women,

·         persons who live with or provide care for infants aged <6 months (e.g., parents, siblings, and daycare providers),

·         health-care and emergency medical services personnel,*

·         persons aged 6 months–24 years, and

·         persons aged 25–64 years who have medical conditions that put them at higher risk for influenza-related complications.  

Persons with disability in politic life everywhere

Kathleen Martinez was nominated by President Barack Obama to be the third Assistant Secretary for Disability Employment Policy and was confirmed by the U.S. Senate on June 25, 2009. As head of the U.S. Department of Labor’s Office of Disability Employment Policy (ODEP), Kathleen advises the Secretary of Labor and works with all DOL agencies to lead a comprehensive and coordinated national policy regarding the employment of people with disabilities.

Blind since birth, Kathleen comes to ODEP with a background as an internationally recognized disability rights leader specializing in employment, asset building, independent living, international development, diversity and gender issues. 

Disability and policy

“When I had my accident I was told that, if I were to live, I’d live in an institution for the rest of my life… I don’t think those people thought that that institution would be the Parliament of Canada” Steven Fletcher 

Steven Fletcher is the Minister of State for Democratic Reform.  In his role as Minister he is responsible for Senate reform legislation, House of Commons seat distribution, the creation of a Canadian agency to promote democracy abroad and many other initiatives surrounding voter turn-out and Canadian democracy.  Steven is one of five Ministers who serve on the Treasury Board cabinet committee.
 
Fletcher was first elected to the House of Commons in 2004 in the west Winnipeg federal riding of Charleswood St. James Assiniboia.  He was re-elected in 2006 and 2008 with increasing margins.  In the 2008 election he won with 54% of the vote or over 13,000 vote plurality.
 Prior to his election, Mr. Fletcher worked as an engineer in the Mining Industry until an automobile collision with a moose, left him a quadriplegic, paralyzed from the neck down.  He returned to University where he obtained a Master’s in Business Administration (MBA).  He was elected for two terms as the president of the student body at the University of Manitoba (UMSU).  He also served two terms on the University Of Manitoba Board Of Governors and as a member of the Board of Directors of the Canadian Alliance of Student Associations (CASA).  Mr. Fletcher was twice elected the President of the Progressive Conservative Party of Manitoba and has played a leading role in many community organizations

Mr. Fletcher has a Bachelor in Science degree in Engineering (B.Sc.GE) from the University of Manitoba.  He is also the first permanently disabled Canadian to be elected to the House of Commons.

ENIL has 777 members in Facebook

Find us in Facebook Causes: Join ENIL –European Network on Independent Living. http://apps.facebook.com/causes/368402?m=618c3fb4  

We invite you to join our Cause in Facebook.

Our Positions:

There should be the right to personal assistance in all European Countries!

No one should live in an institution! Close them now!

Implement the UN Convention on the Rights of Persons with Disabilities!  

Share your story with us!

„Love and Kindness“ Fund

Fund „Love and Kindness“ is aimed as a support to the most vulnerable families in Uzice.

As a generous contribution to this Fund, Association of Dystrophics, Association of CP and Citizen’s Association Scene from Uzice will play their theatar performance „Midnight Summerdream“ by William Shakespeare.

The play will take place on 23 of October at Uzice National Theatre and all the money from the tickets will be transffered to the Fund.

Midnight Summerdream“ will be played in Novi Sad on 24 of October during the International Festival of Disabled Artists.

New ratifications

The ratifications of the CRPD in September by the Czech Republic, Laos, Portugal Seychelles and Turkey, have increased to 71 the number of States Parties to the CRPD.Ratification by Portugal of the Optional Protocol has increased to 45 the number of States Party to the OP. 

Court Cases filed in the Name of Persons with Disability

INTERIGHTS – the International Centre for the Legal Protection of Human Rights, anorganisation for the promotion of human rights and freedoms based in London, hasbrought several cases to the European Court of Human Rights in Strasbourg involvingpeople with disabilities in institutional care. The three applications were filed againstLithuania and Romania, in cooperation with local partner organisations.

Romania: Valentin Câmpeanu, an intellectually-disabled and HIV-positive teenagerdied in tragic circumstances at the Poiana Mare Psychiatric Hospital.Lithuania: a woman who despite a history of mental health problems led a sociallyfunctional and independent life before being placed in an institution by her adoptivefather in 2000.

 http://www.interights.org/case-docket/index.htm

„A Midnight Summer Dream“

Association of Dystrophics Uzice and Association of CP Uzice finalise drama school with Uzice National Theatre and Tanja Jovanovic, the acctress. 

Within this drama school they prepared „A Midnight Summer Dream“ with young persons with disability and members of Association of citizens „Scena“. 

The opening night is Monday, 28 of September 8 p.m. at Uzice National Theatre.

Freedom Drive 2009 – Demands

On 16 Sep 09, more than 400 Freedom Drivers from more than 20 countries will rally to the EU Parliament in Strasbourg. They will be going, driving, be lead by guides or seeing eye dogs. Regardless of their impairment, they are unified by one goal: Independent Living.

They will hand over the following demands to the President of the EU Parliament. 

  1. We call on the European Community to ensure that Independent Living is central in the disability policies of the European Union, as expressed in the EU Disability Strategy, the Disability Action Plan and Article 19 of the UN Convention on the Rights of Persons with Disabilities and its Optional Protocol.  

2. We encourage the European Community to continue to assist the development of community-based services to achieve de-institutionalization across Europe.

3. We call for the implementation of our human right to a personal assistance service, fundamental to guarantee the enjoyment of Independent Living.

4. We call for the opportunity to equally enjoy the right to freedom of movement with the portability of personal assistance services.

5. We call for an earmarking of 5% of EU development funding to go to the development of Independent Living programs in developing countries.

6. We call on the European Community to fully ratify the UN Convention on the Rights of Persons with Disabilities, to sign and ratify its Optional Protocol and for its articles to be implemented in EU legislation and policy. Incumbent in this is the application of pressure by the Institutions and representatives on member states to transpose the convention into law domestically as soon as possible

7. We call for a disability specific directive to uphold and protect the full rights and entitlements of people with disabilities across Europe.

8. Disabled people and our organisations must be decisively involved at all levels of policy-making including planning, producing and implementation.                                                                  

Nothing about Us, Without Us.